Our baby boy, who still hasn't reached his due date, is in the hospital with RSV. Beverly took him in yesterday afternoon. It's a good thing too -- he's gotten worse. They have been suctioning out a lot of fluid out of his lungs.
edit: The title is changed for you, Rivka
[ February 20, 2006, 09:54 AM: Message edited by: mr_porteiro_head ]
Posted by Tinros (Member # 8328) on :
Poor baby Xerxes! He's in my thoughts. Best wishes.
Posted by ElJay (Member # 6358) on :
Best wishes to all of you, but especially Xerxes.
Posted by The Rabbit (Member # 671) on :
Aaahhh! Why does it seem that all our hatrack babies are having troubles.
I'll keep you all in my prayers.
Posted by Dagonee (Member # 5818) on :
I'm praying for Xerxes and the rest of your family.
Posted by dkw (Member # 3264) on :
Me too.
Posted by sarcasticmuppet (Member # 5035) on :
Me three. Posted by Brinestone (Member # 5755) on :
Awww, Xerxes, you get better fast! *shakes fist* Be tough like your namesake(s).
Posted by ketchupqueen (Member # 6877) on :
I will pray for him.
Posted by kojabu (Member # 8042) on :
I hope he gets better soon!
Posted by Tante Shvester (Member # 8202) on :
Poor baby! I wish him a refuah sh'leimah -- a complete and speedy recovery.
Posted by Shan (Member # 4550) on :
Prayers for Xerxes, Beverly, and mph. Hang in there. Scary stuff, I know.
Posted by romanylass (Member # 6306) on :
I am praying for you guys. That is so frightening.
Posted by imogen (Member # 5485) on :
My best wishes are with him, and with your family.
Here's hoping he is back home soon, healthy and happy.
Posted by Mrs.M (Member # 2943) on :
I am so sorry. He will be in my prayers, as will your entire family. I know all too well what you are going through (although Aerin had viral pneumonia, not RSV). If you need anything or just want to talk to someone who has gone through what you are going through, call anytime day or night. beverly has my numbers.
I know it's terrifying, but he will pull through. Aerin did and Xerxes has a lot more in the plus column than she did - he's much bigger and he doesn't have any lung scarring. Plus, he's getting lots of good immunities from beverly's breast milk. They'll give him all the respiratory support he needs and he'll lick this bug.
Posted by sweetbaboo (Member # 8845) on :
Both of my daughters had RSV. I'm sorry. I'm glad that he's getting the help he needs to get better now though! Hang in there!
Posted by Wendybird (Member # 84) on :
Prayers for your little one and you and beverly.
Posted by Evie3217 (Member # 5426) on :
I hope everything turns out well. ((mph)) ((beverly)) and ((xerxes)). Let us know how he's doing.
Posted by beverly (Member # 6246) on :
I am home from the hospital, for now. I don't like being away from X, but I have things here I need to be doing, and kids who need to see that they still have a Mom.
X has an IV, blood-gas monitors, and a CPAP machine. He may remain like this for days. If he gets worse, they will put him on a ventillator. I am not able to hold him and he is not able to handle digesting my milk ATM. Too much energy involved in the digestion process. (Though I'm not sure I'm comfortable with their analysis of the situation--for now I defer to their judgement.)
He is so frail and weak and tired. Breathing is such hard work for him in spite of the breathing treatments and suction. You can see it in the way his chest and abdomen move when he breathes. You can see it in the way his heartrate is too high and his breathing too fast.
Thank you for your care, concern and prayers. I am confident he will pull through this, but in the meantime, we are all just hanging on.
Posted by Fyfe (Member # 937) on :
Baby Xerxes will be in my prayers.
And all shall be well, and all shall be well, and every manner of thing shall be well. --Julian of Norwich
Jen
Posted by whiskysunrise (Member # 6819) on :
Posted by Narnia (Member # 1071) on :
I'll be thinking and praying for your family.
Posted by Mrs.M (Member # 2943) on :
beverly, it's standard for them to stop feedings in cases like X's. Aerin didn't eat until they took her off the vent. When they need that level of respiratory support, digestion is too much for their little bodies. You can see it in their stats if they get fed too soon - they drop dramatically. I'm guessing they'll probably start with small amounts through a feeding tube when he's more stable.
I'm glad to hear that he's not intubated, but don't be upset if he does end up needing to be. He'll probably go along as he is for about a week and then, one day, decide to get better. That's how it happened with Aerin and the nurses told me that that's pretty much how it goes with all of them.
Again, please don't hesitate to call me if there's anything you want to ask about or if you just want to talk.
Posted by larisse (Member # 2221) on :
mph and beverly, your family, and especially Baby Xerxes, are in my thoughts. I hope things get better as soon as possible. I wish I could say more, but I have had no experience in something like this. All I can give you is my hope.
Posted by LadyDove (Member # 3000) on :
Bev, mph and Baby X,
My thoughts and prayers are with you.
Posted by Kwea (Member # 2199) on :
I hope he will be fine. My thoughts and prayers are with you and your family.
Posted by Shan (Member # 4550) on :
Mrs. M is exactly right, beverly. It was the same with Nathan -- I couldn't feed him, either -- it was just too much for his 3 week old body to handle.
When they started minimal feedings through a nose tube, they used my breastmilk, though. I'd like to offer my ears, if you need them, too. Drop me an e-mail, I'll send you the number.
*hugs and prayers for all of the family*
Posted by hansenj (Member # 4034) on :
Add my thoughts and prayers to those already mentioned. Best wishes for a speedy recovery.
Posted by Belle (Member # 2314) on :
I'm so sorry. I still remember when Daniel was admitted to the hospital for pneunomia at three weeks old. Worse feeling of my life was walking into that hospital room and seeing my precious baby lying there with an IV in his tiny hand.
However, it sounds like Xerxes is getting good care and I have no doubt he'll be home soon with you guys. Best wishes and prayers headed your way.
Posted by Nell Gwyn (Member # 8291) on :
*thinking good thoughts for baby Xerxes*
Posted by Amanecer (Member # 4068) on :
I wish Xerxes a quick recovery and I hope that he and your family find strength during this time. My thoughts are with you.
Posted by mr_porteiro_head (Member # 4644) on :
He's on a CPAP machine, and that seems to be helping.
He's doing well enough that the've started feeding him again.
He appears to be getting better instead of worse.
Posted by Ela (Member # 1365) on :
Aww, Porter and Bev, just saw this thread. Hope your little one gets well fast!
*hugs*
Posted by Mrs.M (Member # 2943) on :
Wonderful news! It's a very good sign that they're feeding him again. I am so happy and relieved - I've been checking this thread all day.
Posted by Derrell (Member # 6062) on :
I hope he continues to improve.
Posted by mr_porteiro_head (Member # 4644) on :
My earlier post was premature. He's taken a downturn again, can no longer be fed, and has been drugged and put on a respirator.
Posted by smitty (Member # 8855) on :
We'll keep you guys in our prayers
Posted by twinky (Member # 693) on :
I'm sorry to hear that. I hope it's just a temporary setback.
Posted by beverly (Member # 6246) on :
*sigh*
Yeah, I hoped it wouldn't come to this. But it is needed. He seemed to be doing so well in all the numbers, but occasionally his heartrate would drop without warning or his breathing pattern would deteriorate in a frightening way. It was clear that he just didn't have the energy to "survive" without extra help and quick. We recognize that without the wonders of modern medicine, he wouldn't be alive at all right now.
So the ventillator is what he needs. Thanks, Mrs. M and Shan. I have no experience with this, and the nurses have been telling me the same thing. I appreciate the offers to talk about it. I may not have the time and emotional energy to take you up on it at this time (I am spread pretty thin), but it is appreciated. :sad smile:
I will at the very least make updates to this thread when I can.
Posted by imogen (Member # 5485) on :
*hugs*
I'm glad he can get the medical help he needs. I hope he'll improve again soon.
Posted by mr_porteiro_head (Member # 4644) on :
It's really bizarre to realize that were it not for modern medicine, my boy would be dead. That's never happened before.
Posted by Derrell (Member # 6062) on :
(((beverly,mph,and baby Xerxes))) I hope he gets well soon.
Posted by Mabus (Member # 6320) on :
I truly hope and pray that your son will be all right, mph and beverly.
In my family, I was the sick one struggling to breathe, so you can be sure my thoughts are with you and little Xerxes.
Posted by dkw (Member # 3264) on :
We prayed for you in church today. Except that Bob forget that Bev's name isn't really Bev, so he asked for prayers for "our friends Beverly and Porter and their baby." I'm pretty sure God can figure it out, though. Posted by Shan (Member # 4550) on :
*still praying and holding bev, mph, baby and sibs close in thought*
I made a tape of my voice reading and singing and of some of the gentle music we listened to (when I was pregnant with Nathan) to play for him during those times I could not be right there. The nurses would flip the tape over for me.
Just a thought.
Posted by Shigosei (Member # 3831) on :
I'll be praying for Xerxes and for the rest of your family. I hope he gets better soon!
Posted by Bob_Scopatz (Member # 1227) on :
Oops. I'm easily confused. Sorry 'bout that.
More importantly, I'm sorry the little guy is not doing better. We'll keep praying. And I'll get the names right.
Posted by mr_porteiro_head (Member # 4644) on :
quote:I'm pretty sure God can figure it out, though.
I'm sure of that too.
Thanks for the thoughts and the prayers, everyone.
Posted by Kwea (Member # 2199) on :
I hope he improves soon.
Posted by advice for robots (Member # 2544) on :
You are in our prayers as well.
Posted by katharina (Member # 827) on :
Is that going around? I have a friend who has a brand-new baby who lives in West Valley, and he was in the hospital with RSV as well.
*sending well-wishing vibes*
Posted by mr_porteiro_head (Member # 4644) on :
Yes, it's going around BIG-time. The pediatrics ward is just about filled with RSV babies.
Posted by JennaDean (Member # 8816) on :
Oh, I just saw this thread. I'm praying for you too. It reminds me of my tiny baby in hospital at 3 weeks, for heart surgery. I couldn't feed her either. Isn't it awful, Bev, to know that the one thing a mother's instinct says will help the baby the most - provide it with nourishment and antibodies - is unavailable to you?
"It's really bizarre to realize that were it not for modern medicine, my boy would be dead."
I know exactly how you feel. I'm extremely grateful to be living at this time, and grateful for the medical knowledge we've been blessed with. I'll keep praying for you.
Posted by Christy (Member # 4397) on :
Yeah, we've had two cases at our daycare and have heard of a bunch of cases around us as well. I'm so sorry to hear that baby Xerxes came down with it. How frightening!
You'll be in our thoughts.
Posted by ClaudiaTherese (Member # 923) on :
It's RSV season. I will keep little baby Xerxes in my thoughts.
---
Edited to add: Just read through the whole thread (had only skimmed when I chimed in above). Oh, good grief. (((mph and bev)))
Good, strong thoughts winging X's way!
And yes, feeding is exercise for babies. During feeding is when weak hearts show up, too, as it is the strongest exercise babies get. If he's struggling this much to breathe, he cannot handle feeding right now. But he will again, soon!
Posted by kmbboots (Member # 8576) on :
Keeping your whole family in my prayers. K
Posted by Space Opera (Member # 6504) on :
Oh, bev and mph I'm so sorry! I'll be keeping your entire family in my thoughts. Much love coming to Xerxes.
Let us know if there's anything any of us can do for you, okay?
space opera
Posted by quidscribis (Member # 5124) on :
bev and mph, I'll keep Xerxes in my prayers. I'm sorry he's going through this.
Posted by Uprooted (Member # 8353) on :
oh, wow, somehow I missed this thread. So sorry about the struggle baby Xerxes is going through, and even though I don't know you guys will be praying for you as well.
Posted by Jenny Gardener (Member # 903) on :
We heard about this in the hospital when Little Crow was born. His Little Mother is so conscientious about making everyone wash their hands! I do so hope Xerxes will be all right. He's got lots of love and care from our family coming his way. May he grow stronger and greet you with bright baby smiles next time you see him.
Posted by mr_porteiro_head (Member # 4644) on :
Update: Xerxes is stable, and they are feeding him again. He's still on the respirator, and will remain so for quite some time.
Posted by Tante Shvester (Member # 8202) on :
I keep checking this thread every time there is a new post just in case there is an update. My heart is going out to your whole family. I'm relieved to hear that there is some improvement (kaynehara, spit spit spit). Let there please be a complete and speedy recovery.
And strength and courage to the whole family.
Posted by Mrs.M (Member # 2943) on :
Me, too. I'm glad they're feeding him again.
Aerin was intubated for 2 weeks, which I believe is pretty standard.
The thing that bothered me most was that they pumped Aerin so full of fluids that she swelled up like a balloon. It didn't bother her at all, but it really got to me. I guess it's because it was something I hadn't seen before - I'd seen her intubated and with IVs and monitors for most of her life, but never swollen.
Posted by Theaca (Member # 8325) on :
I don't know much about babies, but very ill adults sometimes need extra fluid to keep the blood pressure and heart rate normalized, because the fluids keep leaking into the tissues. End result is patient looks swollen and gains tons of weight. As soon as the health improves the fluid goes back into the vessels and the swelling gradually resolves.
Posted by Rakeesh (Member # 2001) on :
Good news! I'm glad he's stable, even though he'll be on a respirator for awhile Prayers and best wishes are with y'all.
Posted by romanylass (Member # 6306) on :
I'm so glad he's stable. I have been praying almost non stop.
Posted by pepperuda (Member # 1573) on :
My prayers are with you as well. It does seem to be quite the season.
Posted by mr_porteiro_head (Member # 4644) on :
I got to see Xerxes again today. He's doing much better.
He's responding very well to his feedings, and they've been getting bigger and bigger. They've ramped down the respirator and he's doing some breathing on his own.
The biggest problem is that he's still producing a lot of fluid
Posted by El JT de Spang (Member # 7742) on :
That's great news that he's doing better. I hope he continues to improve.
Posted by twinky (Member # 693) on :
Indeed. I'm glad the news is good. Posted by quidscribis (Member # 5124) on :
Good to hear. Thanks for keeping us updated. Posted by smitty (Member # 8855) on :
Good news on the improvement
Posted by imogen (Member # 5485) on :
I'm glad to hear that.
Posted by Shan (Member # 4550) on :
I'm glad to hear there's progress. Posted by ketchupqueen (Member # 6877) on :
Glad to hear he's improving! You have my continuted thoughts and prayers. Posted by Tatiana (Member # 6776) on :
Will someone explain to me what CSV is? Is it caused by a pathogen (the V is for virus?)
<keeping X in my prayers>
Posted by mr_porteiro_head (Member # 4644) on :
No real update on Xerxes, but my mother-in-law flew into town this morning to help out. That will be a big help, considering I'm in the middle of crunch week at work.
Posted by ElJay (Member # 6358) on :
Thanks for keeping us updated. Just wanted to let you know I'm still thinking of y'all. Hope having Bev's Mom around is helpful for you both. Posted by sweetbaboo (Member # 8845) on :
Tatiana, from what I remember when my kids had RSV (it stands for respiratory syncytial virus *thanks maui babe, I was editing as you posted but you were quicker*). From what I understood, it is the same virus as the cold in adults but it is very dangerous to infants. Once they hit a certain age (I can't remember but it seems around 24 months) that it's not as dangerous.
Glad to hear that Baby X is doing better. Best wishes for continued improvement!
[ February 15, 2006, 04:39 PM: Message edited by: sweetbaboo ]
Posted by maui babe (Member # 1894) on :
RSV = Respiratory Syncytial Virus
A syncytium is when a bunch of cells all kind of merge into one large mass.
Posted by Theaca (Member # 8325) on :
RSV isn't actually the same thing as a common cold virus, but the symptoms are usually mild and almost identical to a common cold in adults. It's usually only dangerous to infants/young kids. The elderly are at risk of a more severe RSV infection, I've just learned.
Posted by sweetbaboo (Member # 8845) on :
Thanks for the clarification Theaca.
Posted by pooka (Member # 5003) on :
(((the whole family)))
Posted by Mrs.M (Member # 2943) on :
I'm so glad he's doing well (as well as can be expected). It's great that he's doing some breathing on his own. I remember them telling me how many breaths Aerin was doing herself each day. Feeding is always a good sign and the bigger the amount, the better.
You say he's producing a lot of fluid, but what's the consistency? Aerin's started out pretty thick and got thinner as she got better.
My entire family is praying for him and I think about him constantly. I even mentioned him to my pediatrician when Aerin was getting her Synagis shot.
Posted by beverly (Member # 6246) on :
quote:The thing that bothered me most was that they pumped Aerin so full of fluids that she swelled up like a balloon. It didn't bother her at all, but it really got to me. I guess it's because it was something I hadn't seen before - I'd seen her intubated and with IVs and monitors for most of her life, but never swollen.
You know, I have been thinking about this. Xerxes has a little roommate who was just taken off his respirator today (he was on for exactly a week) and while he is a big baby, he seems extremely, even disturbingly, plump. I mean, even his head is fat, if you know what I mean.
And I've been wondering if I'm going crazy, but Xerxes seems to be more plump every time I look at him. His cheeks seem very round, and even the skin around his temples is widening. I am assuming that it is the swelling. And yes, I am not thrilled about it.
This:
quote:I don't know much about babies, but very ill adults sometimes need extra fluid to keep the blood pressure and heart rate normalized, because the fluids keep leaking into the tissues. End result is patient looks swollen and gains tons of weight. As soon as the health improves the fluid goes back into the vessels and the swelling gradually resolves.
, however, is very informative and comforting. I guess it is normal and perhaps even good? I know they said at the hospital that this kind of fluid retention can happen on the respirator and on an IV, though I am not entirely clear on why.
Yup, things are stable. I must admit to being a tad bit jealous when I see Xerxes roomie cuddled freely by his mommie now that he is off the respirator. I can't wait to cuddle my baby again!
quote:You say he's producing a lot of fluid, but what's the consistency? Aerin's started out pretty thick and got thinner as she got better.
The secretions are still *very* thick, unfortunately. Posted by mr_porteiro_head (Member # 4644) on :
quote:And I've been wondering if I'm going crazy, but Xerxes seems to be more plump every time I look at him.
I saw the same thing. You're not crazy.
Posted by Mrs.M (Member # 2943) on :
They'll get thinner. With Aerin, there was no change until one day shejust decided to get better and then she sailed through her recovery. It's always been like that with her, but the nurses told me that almost all the RSV babies are like that. Try to remember that things will improve as quickly as they declined, once he gets past the hump.
The swelling does go down pretty quickly after they stop the fluids. They'll probably give him a diuretic to help him flush them out. Aerin had to have new diapers every 45 minutes for about a day, then she was pretty much back to normal.
The hardest thing in the world is not being able to hold your baby. Every instinct is screaming at you to pick her up and comfort her, but you just can't. When you finally do get to hold him, you'll see his stats improve almost the second you pick him up.
I'm praying all the time that he'll soon be back in your arms where he belongs.
Posted by Theaca (Member # 8325) on :
Mmmm, I wouldn't say the fluid retention is good. It's just something that happens. In healthy younger adults, it has to do with factors such as the amount of salt in the IV and in IV antibiotics and the nutrition level. Most importantly people who are septic with a bacteria have leakier vessels from the infection, causing more swelling and requiring more fluid to keep blood pressure up. Since adults don't usually get critically ill from RSV I don't know if RSV causes leaky vessels or not. In general, whatever the reason, it improves when the patient improves.
Posted by Mrs.M (Member # 2943) on :
I was wondering how he's doing today. Let us know if you have the time.
Posted by mr_porteiro_head (Member # 4644) on :
Right On: The consistency of the lung poop has gotten better, and they're starting to talk about taking him of the respirator and back onto the CPAP.
Right Off: They moved Xerxes to a different room, so now Beverly isn't able to sleep in the same room with the baby.
Posted by Tante Shvester (Member # 8202) on :
Posted by Elizabeth (Member # 5218) on :
Oh, Porter, that is awful. And, great!
Posted by beverly (Member # 6246) on :
Slight correction: the ventillator is currently working as a CPAP (no breaths given, only soft, constant pressure to make inhaling easier.) So, when they take him off of the ventillator, he won't need to go on CPAP. He may need to stay on oxygen, though.
The cool thing is that he isn't on oxygen at all right now. If he needs it later it will be because the mucous is building up in his lungs again. With the ventillator, it is really easy to suction his lungs. When he is off, they will be limited to suctioning through his nose.
That is why they are reeeeally hesitant to take him off the ventillator unless the mucous slows down. It *is* thinning, though, which is a good start.
Yeah, I'm bugged about the room change. They moved me for the convenience of the respiratory therapist. I used to be rooming with another baby who was on a ventillator, but since that baby is off of it, he doesn't need a resp therapist anymore. There was another room with a baby who desperately needs the resp therapist, so they moved me in there In fact, I haven't even been moved into my sleeping room yet, so for the last 3 hours or so, I was "homeless". I am pretty grumpy--an introvert with no place to hide away. :grump grump:
Posted by Tante Shvester (Member # 8202) on :
Oh, I am really rooting for the little one to keep getting better and better all the time. Stinks about not being able to sleep with him, when I know it is wrenching to be away from him.
Posted by imogen (Member # 5485) on :
:sympathetic grumping:
Good news about the thinning mucous though.
Posted by whiskysunrise (Member # 6819) on :
I hope that he continues to get better.
Posted by Mrs.M (Member # 2943) on :
It's wonderful that he's improving so quickly. I'm not surprised that they want to keep him tubed for suctioning - they can do it so much more effectively that way. Aerin's stats always got immediately better after they suctioned her.
I'm surprised that you have roommates. Is the hospital very small or is it just very full? They should do some respiratory therapy after the baby is extubated, just not round the clock. Aerin got some right up until she was discharged. Every 2 hours the therapist would pound on her (gently) with this little rubber cup thingy. She loved it. It kept the mucous loose and helped her to breathe better.
Posted by mr_porteiro_head (Member # 4644) on :
Xerxes was taken off of the respirator early this morning!!!!
He's not even on oxygen anymore!!!!
I'm extremely happy.
Mrs.M -- the hospital is extremely full. There's somewhat of an RSV epidemic happening right now.
Posted by Narnia (Member # 1071) on :
Yay! Great news!! Posted by twinky (Member # 693) on :
Posted by plaid (Member # 2393) on :
yay!! Posted by Jon Boy (Member # 4284) on :
quote:Originally posted by mr_porteiro_head: Xerxes was taken off of the respirator early this morning!!!!
He's not even on oxygen anymore!!!!
I'm extremely happy.
That's great! Any idea when he might be able to come home?
Posted by mr_porteiro_head (Member # 4644) on :
I'm hoping by Monday, but that's just a hope.
Posted by Mrs.M (Member # 2943) on :
I am overjoyed!!! What a quick recovery - you've got a strong little man there. They released Aerin after she was off oxygen for 24 hours.
Don't be surprised if he's hoarse for a while - it'll go away eventually.
Also, make sure that the doctors and/or nurses talk to you about RSV prevention. I had never heard of Synagis before and I had no idea that bleach is the only thing that kills RSV. They might have even more tips.
Posted by ketchupqueen (Member # 6877) on :
quote:I had no idea that bleach is the only thing that kills RSV.
*feels good that she cleans everything with bleach* And my dad thought I was weird.
I learned it, incidentally, from my mom.
Posted by Tante Shvester (Member # 8202) on :
Good going Baby X! You keep on getting better and better!
Posted by lem (Member # 6914) on :
I am so glad your baby boy is doing better. I have a 17 month old son who was in the hospital recently. I never knew the extant of worry I could feel. (He appears to be fine now).
WOoHOo for your family!
Posted by Brinestone (Member # 5755) on :
*keeps sending get-better vibes Xerxes' way*
Posted by rivka (Member # 4859) on :
Posted by Dagonee (Member # 5818) on :
Yaaay!
Posted by LadyDove (Member # 3000) on :
Good job, Baby X Posted by romanylass (Member # 6306) on :
Yay! Great news!
Posted by Christy (Member # 4397) on :
Yay! Good news. Glad to hear he's recovering well.
Posted by JennaDean (Member # 8816) on :
This is great news!
I must say, as concerned as I am, the phrase "lung poop" made me chuckle. Posted by Telperion the Silver (Member # 6074) on :
Oh Porter and bev!!
*big hugs* How scary!
I'm glad little X is doing better! Posted by Megan (Member # 5290) on :
Yay for Baby X! Posted by ClaudiaTherese (Member # 923) on :
Yay, Xerxes!
Posted by Space Opera (Member # 6504) on :
space opera
Posted by Shan (Member # 4550) on :
I'm glad for the good news! Keep hanging in there!
*BIG SMILE*
Posted by mr_porteiro_head (Member # 4644) on :
Xerxes is home. Posted by Space Opera (Member # 6504) on :
Double yay! Happy homecomings to all of your family!
space opera
Posted by Dagonee (Member # 5818) on :
Woohoo!
Posted by rivka (Member # 4859) on :
Wow. Fast!
That is great! Posted by Olivet (Member # 1104) on :
hat is so wonderful! I'm so happy he's well.
Posted by ketchupqueen (Member # 6877) on :
Yay from me as well!
Posted by Shan (Member # 4550) on :
Holy smokes! That is very fast! Yay!
Posted by Nell Gwyn (Member # 8291) on :
Woohoo! Yay for Xerxes being a fast healer!
Posted by sarcasticmuppet (Member # 5035) on :
w00t!
Posted by Jon Boy (Member # 4284) on :
That's great! I'm very happy to hear that he's doing better.
Posted by imogen (Member # 5485) on :
Great news!
You must be all very happy. As am I! Posted by Fyfe (Member # 937) on :
Oh, hooray, I am so happy for you!
*sends good vibes at the baby*
Hooray for healthy babies!
Jen
Posted by sweetbaboo (Member # 8845) on :
Welcome Home Baby Xerxes!
Posted by BannaOj (Member # 3206) on :
YAY! Posted by Tante Shvester (Member # 8202) on :
Welcome home (again) Baby X! Now behave and stop scaring your poor parents. And your Tante Shvester.
Posted by rivka (Member # 4859) on :
(Maybe it's time for a thread-title change?)
Posted by Telperion the Silver (Member # 6074) on :
Yay!
Posted by Derrell (Member # 6062) on :
Way to go, Xerxes!
Posted by ElJay (Member # 6358) on :
I'm so glad. Here's to a couple of nice, boring weeks to make up for all the excitement. Posted by Tante Shvester (Member # 8202) on :
Can we please change the thread title, already? Like "Hooray! Baby Xerxes is home!!!"
I'd love to see that.
Posted by Christy (Member # 4397) on :
Here, here!
Posted by romanylass (Member # 6306) on :
yay!!! Great news.
Posted by Mrs.M (Member # 2943) on :
I was pretty sure he'd be discharged before today, but I'm still ecstatic. It's such a relief to have them home, but it's nerve-wracking, too. I have to admit that I still listen to Aerin's chest every day.
Did they give him Synagis?
Posted by beverly (Member # 6246) on :
I just want to say, thank you to all of you who stood vigil with us, for your caring thoughts and prayers. It is so good to have our baby home!
He wasn't "himself" for awhile, I assume, because he was going through withdrawl from the opiate sedatives. The sedatives are necessary to keep intubated babies from removing their tubes (which Xerxes did one time anyway). They try to use the sedatives as sparingly as possible, and sometimes the babies go long hours without them and even lie there awake and content for hours.
But withdrawl from the sedatives brings on crankiness and restlessness. Our normally sweet-natured Xerxes just couldn't sleep very long and was keeping me up at night. The last night I spent with him in the hospital, I had to ask for help from the nurses twice so I could sleep. They held him for me.
That last day in the hospital was so lonely. While Xerxes was intubated, he had round-the-clock nurse observation and care. That last day they would check on us, but infrequently. I missed their lovely company. It was comforting and fun. We had such great nurses.
But now that I could hold him and feed him, I just couldn't justify leaving him. It just killed me to have to leave and not take him with me. It was great slowly seeing more and more tubes and wires removed over time.
Xerxes has also been ravenous since being tube-free. That has been difficult as well. But things are slowly getting back to normal. The first night especially, I watched over him with fear that he might need to be rushed to the hospital for a last deep suctioning. But he pulled through fine. He still gets rather stuffy at night, but nothing we can't handle together.
Having my mother here was such a pleasure and relief. It was sad to say goodbye to her today, but gladly both my parents will be back to visit in a week and a half.
Thank you all again. It was wonderful for both Porter and I to know that you are here and you care.
quote:Did they give him Synagis?
No. I totally forgot to ask about this. Posted by beverly (Member # 6246) on :
I know it has been awhile, but I was going through the photos I took at the time and it just brought everything back again. I don't know if y'all care, but I wanted to share them with you.
Healthy and robust just a couple days ago.
Posted by whiskysunrise (Member # 6819) on :
He is a very cute baby. I'm glad that he is still doing better.
Posted by Tante Shvester (Member # 8202) on :
Thanks for sharing the pictures. He is quite a baby!
Posted by Mrs.M (Member # 2943) on :
He looks FANTASTIC!!! His little nose is especially cute.
Are you relaxing at all? I'm taking baby steps, but I won't really relax until May (end of RSV season). Our stupid microwave sounds just like Aerin's monitor and it went off just when I was looking at the intubated picture. Of course I ran into Aerin's room to check on her.
Posted by JennaDean (Member # 8816) on :
Oh, he's so tiny to be in the hospital. Brings back memories of my baby in hospital at 3 weeks. It hurts to see them so helpless and all wired up.
Glad to see him looking so much better! He's really cute. Posted by Noemon (Member # 1115) on :
Glad he's doing so well bev!
Posted by imogen (Member # 5485) on :
He's a cutie. Posted by ClaudiaTherese (Member # 923) on :
Oh, how precious. Posted by Tatiana (Member # 6776) on :
Thanks for the latest pics! They are adorable! Posted by mackillian (Member # 586) on :
Pointy little elf ears! Posted by beverly (Member # 6246) on :
Thanks, y'all. You know this is near and dear to my heart. It does me good to be able to share it.
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Best wishes to all of you, but especially Xerxes.
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They moved me for the convenience of the respiratory therapist. I used to be rooming with another baby who was on a ventillator, but since that baby is off of it, he doesn't need a resp therapist anymore. There was another room with a baby who desperately needs the resp therapist, so they moved me in there In fact, I haven't even been moved into my sleeping room yet, so for the last 3 hours or so, I was "homeless". ![[Party]](graemlins/party.gif)
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Way to go, Xerxes!