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Oh, Belle, what an ordeal you're surviving. I so wish you could be the one cancer patient who sails through treatment with no complications, but I'm grateful that you're coming through the complications. Not a day goes by when I don't think about how you're doing and pray for you.
BTW, Aerin finally fits into her jumper and we get so many compliments on it. People ask me where I got it and I proudly tell them that it was hand-made especially for Aerin.
Posts: 3037 | Registered: Jan 2002
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Oh, Belle, how scary! I'm so glad the nurses were able to help you.
What does that drug do, anyway - the one you reacted to? Is it something that will be replaced by another drug? Or will you just ... do without whatever it does?
Posts: 1522 | Registered: Nov 2005
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Jenna, it's a cancer drug, and it's meant to kill cancer cells. I would be more worried about having to discontinue it if my cancer had spread, but since it hasn't, I feel confident. Besides, oxaliplatin, according to my doctor is a "mother" - a drug that really is hard on the body and one that few people ever complete the full treatment schedule with. Either because they have a reaction like me, or the side effects are too much to manage.
It's a relatively new drug, and prior to it coming out, the gold standard colon cancer treatment was 5-FU and leucovorin - the exact regimen I'm on now. While oxaliplatin has added to the success rates, there is still a good track record with the 5-FU and leucovorin regimen, so it's not as if I'm getting nothing.
I feel okay about it, I still feel confident that we've got this cancer licked. I just need to finish the 5-FU/leucovorin treatments and the doc says my long term outlook is still very positive.