"Have I not commanded you? Be strong and courageous; do not be terrified, do not be discouraged: for the Lord your God will be with you wherever you go."
Ok, those who have been here for a while have probably heard several episodes of the Mooselet Saga. When last we heard from our hero, his kidneys and urinary tract were doing fine, as were his feet. Last time we saw the urologist, he said the tests looked great, and we were gonna follow up with another test in three months (this was three months ago). The orthopedist said his feet were looking good, and that he only needed to wear the leg braces when he slept at night instead of all day, and we'd have a follow-up visit in six months (this was six months ago).
We meet with both the urologist and the orthopedist next week. We're going in relatively blind with the orthopedist -- no tests done, all we have are his feet to look at. Well, they look great. He's running and jumping and the feet look pretty straight. No worries on that front, right?
Not so much with the other. It was suggested that the possible reason for his recurring UTIs every time he went off antibiotics was because he wasn't circumcised, so he had that done a while ago (unpleasant, but we've moved past it). He was to remain on antibiotics until we saw his urologist again, so we haven't yet seen whether or not another UTI may happen.
We got the test results back today from his latest ultrasound, though. The fun excerpts:
quote:Review of the films demonstrates now dilation of the renal collecting system on the right side.
The right kidney now shows an element of hydronephrosis. Previously the renal pelvis was dilated, now the renal collecting system shows mild dilation.
Summary: Interval development of mild to moderate right hydronephrosis in comparison with 2/6/03.
So from a layman's reading of this thing, it's back. We'll know more when we see the doctor next week.
But I gotta say -- it's getting really difficult not to be discouraged. Terrified we've already done, long ago, and hopefully we don't need to return to that stage. In the grand overarching universal scheme of things, we're ok -- we honestly do trust that all will work out. But in the day-to-day on-my-mind dealing with things realm, this is really tough, especially when we're also dealing with the normal stresses that go along with a new baby (entirely healthy so far, thankfully) in the house.
So anyway, there's your update -- that's where we are. As usual, prayers are always welcome.
[Edit -- Thread Subject.]
[ April 29, 2004, 05:59 PM: Message edited by: Papa Moose ]
Posts: 6213 | Registered: May 2001
| IP: Logged |
*giant hug for all the Meese* And here I was surfing Hatrack, being all pissed that they are digging a giant hole in the middle of the road right next to our house in the middle of the night, interfering with my much-needed beauty sleep - this kinda puts my unhappiness and annoyance to shame. I'm so sorry to hear that little Carl is facing more uncertain problems. I can't imagine what you and Squirrel must be going through. I'll be praying for all of you. Please continue to keep all of us updated on how things go. John 14:8
I'm so sorry. I can't willingly imagine the degree of fear, frustration and sadness you guys are going through. Carl is so precious, it just seems so... mean that he has had to spend so much time in the hospital.
Even though it may seem like you guys are just too worn out to be able to face this new hurdle, you will. And you'll come through in your usual graceful style.
I've often told you how your and Connie's courage impress and inspire me. Thank you for that.
Of course you have my thoughts and prayers. Please let me know if I can do anything to help.
Posts: 2425 | Registered: Jan 2002
| IP: Logged |
Thank you all for the prayers, e-hugs, well-wishes, both here and via e-mail. It's good to have a place we can go both to spill our problems and to receive support right here in the house. Hatrack rocks because of its members, not just its owners.
Pop, is it possible for you to network with other parents going through similar adventures? I can commiserate to a degree, what with Rayne's hip issues. I found real help when I discovered a discussion group on yahoo that is made up exclusively of parents of kids with hip dysplasia. It has helped *enormously*, not only for support, but also for hearing other people's stories that in a lot of cases are far worse than ours. And some that are better and have good news to share. So I can see "it could be worse" and "it's going to get better" all at the same time.
Even so, I think that being discouraged for a little while is okay. Having permission to be upset and discouraged is another part of what I got from this yahoo group....because I think some people (we got some "support" like this) think that we should just be grateful it isn't something lifethreatening. You feel what you feel, and sure while it's not life threatening, it is still stressful, and you still wish it wasn't happening.
I'm praying for you and Mama, Mooselet and Superstation. That this gets figured out swiftly, and resolved even faster. Big online hugs!
Posts: 5948 | Registered: Jun 2001
| IP: Logged |
To be honest, every time I've looked in on other parents going through the same thing (at other on-line forums), it either seems to be a battle over whose kid has it the worst, or lots of people talking and nobody listening, or at least nobody really responding or seeming to care. That's undoubtedly a horrendous unfair snap judgement based on only a few places, I realize -- but I've never felt the need to have someone who has gone through the same exact thing to talk to. It's not the specifics -- it's the underlying helplessness and frustration, and there are plenty of people here in my on-line family who've felt that under different circumstances. That's enough for me. It's more helpful, actually, because my mind gets occupied by considering the relation between unlike things.
That said, thank you for the suggestions. I always know places I can go if I want to hear about people who have it worse. Sadly, just thinking about our hosts' experiences can plenty take care of it. Superstation's middle name, in fact, is in honor of their departed son. Never would we claim our troubles are the worst at Hatrack.
But as I'm sure is the case with the Cards, the joy in our children has always outweighed the heartache, and we wouldn't choose for even the briefest moment to trade places with anyone. Again, thank you all, and keep those cards and letters coming....
I'm kinda new here so I missed the beginning of the struggles you're going through with Mooselet's health issues.
I've never been a parent, and at my age (and the age of Diane), it's a sure bet that's one experience I'll have missed in life.
Hoping that it might be helpful, I thought I'd let you know that both Diane and myself had health/disability issues as kids that put our own two sets of parents in much of the same state of helplessness and uncertainty.
For the first few years of my life, my parents weren't really sure if I'd get to live very long. My partner, Diane, was misdiagnosed with Duchenne Muscular Dystrophy (she has a different, nonfatal condition) and her parents believed for many years she wouldn't live past her teen years.
Regardless of the prognosis, we both went through a lot of scary medical stuff as children. Lots of hospital visits, surgeries, etc.
For what it's worth, there's some commonality we've found in our childhoods:
We both remember our childhoods as happy ones.
The medical stuff - even the pain - was ultimately much harder on our parents than it was on us as individuals. Although children are as variable as the adults we grow into are, we do tend to be more adaptable and accepting of these things than when they happen to us as adults. (and of course, it's easier when it's us it's happening to than a parent.)
Everything I've seen from you indicates you and Squirrel can navigate this with grace and strength. I apologize for the rambling nature of this particular post. It's meant to be supportive - I hope it is in some way.
CT, I'm not sure what ureteral reimplantation is, for sure. As far as I understand, they never disconnected the ureter. He had the vesicostomy, and the blockage from the posterior urethral valves was complete, so everything came out his sub-bellybutton. A year later they resected the valves and closed the vesicostomy. So it seems similar in effect to what a ureteral reimplantation sounds like to me, except that they never had to disconnect and reconnect the ureter.
Just because we didn't already have enough to worry about, he had some blood in his stool today, too. We called the clinic that's open on weekends, and they said to watch for the next one and see if there's blood again, and if so to call back, but he didn't have another dirty diaper today. Either way, we're calling the pediatrician tomorrow. Personally I think Mama's dealing with things much better than I am (I don't think she cried at all today, versus the three times I did), but neither of us is exactly cheery. Adding to this that we went to a wake this afternoon and will be attending a funeral tomorrow morning, this just hasn't been a really good time for us.
Pop, that is discouraging. You and your family are in my prayers.
I know what you mean about Hatrack being a good place to for company. It doesn't matter that anyone's going through the exact same thing (although many have) - this is just a good place for love and support when you need it, and a good place to extend love and support when you're able to give it. You give out so much love and support here, it's an absolute honor to included in some of the trials. I apologize if that sounded awkward; I mean, I'm so glad the Meese are here.
Posts: 26077 | Registered: Mar 2000
| IP: Logged |
Pop, I hate that Mooslet, you, and Squirrel are having to go through this. I'll definitely be thinking of you.
sndrake, if I were in Pop's position, your message would have been exactly what I needed to hear. It didn't seem rambling at all, for what it's worth.
Posts: 16059 | Registered: Aug 2000
| IP: Logged |